It's funny what you find as you dig through old paper work. I came across this gem. It was written for a speech he gave in January 2012. He was an advocates and loud voice for those living with ALS far before we started the ' ALS In Wonderland Foundation'
" I am now 66 years old. I was diagnosed with Amyotrophic Lateral Scerlosis on October 8, 2009. There were signs something was wrong for a couple of years prior, but I thought it was normal for anyone active especially since I was past 60. Today, I can still walk short distances but very tiring. I do not play golf anymore or workout. I can do some yoga and walk in water. I try to focus on living and doing the things I still can do.
Upmost, I am blessed to have a loving family and having time to be closer with them. My main caregiver is my loving wife Jean whom was an army medic during Vietnam war. She is now a retired RN and truly my best friend. When first diagnosed I thought about it and after some research, came to the conclusion Why Me? Why Not? I try to look at this as part of life's journey. I am certainly speaking today for the ALS victims and their loved ones who are so affected. The family & caregivers give so much and when attending support group meetings for ALS you really understand their love and sometimes loses.
Many people with ALS are ashamed or afraid to ask for help. These people really deserve our help and support. As of 2008 ALS for veterans is considered a presumptive disability. ALS is considered 100% service connected. The department of veteran affairs is a little slow on certain benefits, but the medical part is satisfactory. I take medication called Rilutek that slows the progression of ALS for only as they say three months. It is the only authorized medicine for ALS. Keeping a positive attitude is my job for today and forever." Richard Blume written January 20, 2012
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Lara Blume McGee
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